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Publications

Advance care planning in MSA

Advance care planning can be difficult to engage in, but it is important to make sure that health care provision towards the end of life aligns with the personal wishes and preferencies. In this viewpoint, the MeDeMSA team reflects on frequent barriers encountered by MSA individuals, caregivers and healthcare providers and ways how to overcome them:
https://link.springer.com/article/10.1007/s10286-024-01049-w

A 6-item score for early MSA-P

Despite technological progress, MSA is often diagnosed four to five years into the disease course. This is a major hurdle for a timely engagement in clinical trials with disease-modifying candidate drugs. In this cooperation with the amazing Tel Aviv and Belgrade teams, we developed a bedside 6-items score to early identify people at high risk of suffering from the parkinsonian variant of MSA.

Read more under: https://doi.org/10.1002/mdc3.14048

Do men and women differ? Of course they do.

Does this impact on the clinical presentation of MSA? In fact it does Read more in this paper by Dr Fabian Leys and the Innsbruck team: https://rdcu.be/dFrPj

Pain in MSA

Two out of three persons living with MSA experience pain, but only half of them receive any kind of targeted treatment. Here we reviewed the current understanding of pain in MSA and highlighted the key unmet needs to address next: Pain in Multiple System Atrophy a Systematic Review and Meta‐Analysis - Campese - 2023 - Movement Disorders Clinical Practice - Wiley Online Library